Chronic Obstructive Pulmonary Disease (COPD)

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Chronic Obstructive Pulmonary Disease (COPD)
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Ugh

As long as I don't move there's no pain.
I had to go downstairs for 2 packages cuz Pauley was not going to help. By the time I got back to my apartment I was out of breath and wheezing.
My COPD got bad over the last 2 years. Now I've got dulera and a rescue inhaler.
My hips don't hurt like I expected. My tummy doesn't hurt anymore. And I don't have a migraine. But both of my knees are very ouchy. And I've got a mass the size of half of a hot dog under my abdominal wall. It's basically a cyst from a testosterone injection. It really hurts.
I keep thinking I have plans for the weekend but the only thing I can think is I wanted to do a fun charcuterie board and movie night. I need to get grapes.
Next week Saturday is the curiosities and oddities expo. We're going with my QPP. We've gone the last 2 years and it's become something we really look forward to. I'm gonna try to find a really cool necklace and a new shirt. I'm gonna wear my baphomet shirt from last year. I decided I'm gonna wear my puppy gear to the expo. I'll have my partners take cool pictures so I can share.
Of course the week before that I have 5 appointments. I'm gonna really need to unwind and be surrounded by dark macabre trinkets baubles and tchochki.
I've been crying off and on for a few days. So much emotional weight on my shoulders. And I need to talk to someone who understands how scary it is to have so many health issues happening all at once.
I messaged my aunt over the weekend and she replied today. We chatted about health issues. I told her about what I have going on. My mom doesn't tell her about me. And I found out the only way she talks about me is to bitch about what topics we discuss.
#CheckInWithMe

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New group formed for anyone with osteoporosis

#MultipleSclerosis I formed this group for I did not find any for those living with osteoporosis. I called this new group: "Living with Osteoporosis". The goal for this group is like other groups in that it is a space to discuss any and all difficulties with this condition. There are many people who have it and I am among them. Apparently, my case is severe enough to take medication for it. Who out there has had difficulties with this? If so, what are they?#Anxiety #Arthritis #ChronicFatigueSyndrome #CommonVariableImmuneDeficiency #ComplexRegionalPainSyndrome #CoronaryHeartDisease #CrohnsDisease #CheckInWithMe #CheerMeOn #MightyTogether #MyCondition #MultipleSclerosis #MoreDiseases #ChronicIllness #ChronicIllness #Osteoporosis #Other #ChronicObstructivePulmonaryDisease #Fibromyalgia #Endometriosis #EhlersDanlosSyndrome #UlcerativeColitis #RheumatoidArthritis

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I'm new here!

Hi, my name is GwynStone. I'm here because I have multiple chronic illnesses including FND, COPD, Fibro, Arthritis and Diabetes. I'm looking for tips, tricks, and support in dealing with living with multiple chronic illnesses.

#MightyTogether

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I'm new here!

Hi, my name is mari101_2000. I'm here because I think online support is critical. I'm a 48-year-old mom of two. Brittany is 28 and is on the autism spectrum and has PTSD. My son, Tyler, is 24 and diagnosed with bipolar and ADHD. He is unmedicated by choice. He's been sentenced to three years for probation absconding. We don't have a relationship at the moment. I've been through a lot of trauma, I'm either MDD or Bipolar 2, and I don't know why they can't tell the two apart. I have CPTSD, depression, and anxiety. I also have a chronic illness.. I have very bad gastroparesis, and it's really affecting my life. I also have horrible arthritis, fibromyalgia, and back and hip pain. These are the things that I'm struggling with. Brittany had a baby that she'd worked very hard to bring forth. She had Everleigh, and she was a stunner. Five weeks later, she died of SIDS. So we are all grieving her. Also, we lost my mother to Alzheimer's about 6 months later.

Sorry, I just spilled my guts. Hope to make some connections!

#MightyTogether #Anxiety #AutismSpectrumDisorder #Depression #PTSD #Grief #Fibromyalgia #Migraine #Gastroparesis #Arthritis #COPD

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I'm new here!

Hi, my name is mari101_2000. I'm here because I think online support is critical. I'm a 48-year-old mom of two. Brittany is 28 and is on the autism spectrum and has PTSD. My son, Tyler, is 24 and diagnosed with bipolar and ADHD. He is unmedicated by choice. He's been sentenced to three years for probation absconding. We don't have a relationship at the moment. I've been through a lot of trauma, I'm either MDD or Bipolar 2, and I don't know why they can't tell the two apart. I have CPTSD, depression, and anxiety. I also have a chronic illness.. I have very bad gastroparesis, and it's really affecting my life. I also have horrible arthritis, fibromyalgia, and back and hip pain. These are the things that I'm struggling with. Brittany had a baby that she'd worked very hard to bring forth. She had Everleigh, and she was a stunner. Five weeks later, she died of SIDS. So we are all grieving her. Also, we lost my mother to Alzheimer's about 6 months later.

Sorry, I just spilled my guts. Hope to make some connections!

#MightyTogether #Anxiety #AutismSpectrumDisorder #Depression #PTSD #Grief #Fibromyalgia #Migraine #Gastroparesis #Arthritis #COPD

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#Independence

I know i should be nice and warm to my siblings especially the one who does so, so, much for everyone- and whose daughter is presently involved in a divorce. This family member’s plate is full, so full.

I know I should be happy I am not bothering anyone. My husband has been doing what my siblings mostly have done in the past. I should be exceedingly happy I am not bothering them. Or my husband doesn’t bother his family- really don’t know how they would respond if he did bother them for help.

But it hits me right between my eyes what my marriage is. Just someone who is “ there” in the event of need. I really don’t think there is much more to it. It is sad to me. But I have to put my big girl pants on and realize it could be a lot sadder.

My husband and I simply are in it- so we can leave our families to their own lives- this is a good thing but hard to swallow at times.

This I should be happy about bc my siblings have done so much for me in the past

A negative that is hard to swallow-
But especially my husband’s family will inherit monies from us-and what will we get in return-all I can do is hope my husband gets care-I question this. I wonder if my husband will get anything-

And I still work when his family member never lifted a finger to - and they- his family - are going to get mine and my husband’s money some day-

They were not at all nice to me years ago when we bought our house-and eventually they ( my husband’s family) will get 1/2 of the house. . W/o me- we would have never had this house. one relative on his side was horrible to me about me wanting a house- w our money-!! After we went to all their smoke filled parties as his sibling’s kids were growing up- and i have emphazema. And i got sepsis from my copd - last fall where i could have died from— it helps to vent-I smoked myself- not at that time-but in life-I have to take responsibility-it ie best for me to stay away from them-because it is hard for me to hold it together when i have anything to do w them/ my husband doesn’t drive-let my husband take the bus-I am not his chauffeur-but i always drive him-

I am just a lot kinder -thanks for letting me vent-his family is very different from me- i have to let I go-

Be glad I am not bothered my siblings--

If he bothered his family- I don’t think they would do anything-

I have to let this go-

It is like i married a caregiver-and there isn’t much else

Well, it helps me to vent- i really don’t know where else i can-

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The appointment was good

Quick overview:

*Januvia prescription sent

*Norco refilled

*Rescue inhaler script sent... and then pauley showed me an inhaler from my doctor from last year. It's the same. I was gonna try to get the inhaler today but now it's not urgent.

*My doctor was sympathetic when I explained my current depression caused by adjustment disorder. We talked about how I don't have problems with my PCP office.

*Discussed lab results. We're concerned about my fast weight gain and insanely high A1c. I have to find an Endo ASAP. I'm gonna start making calls on Tuesday.

*Follow-up appointment in one month

#DiabetesType2 #ChronicPain #AdjustmentDisorder #COPD

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The appointment was good

Quick overview:

*Januvia prescription sent

*Norco refilled

*Rescue inhaler script sent... and then pauley showed me an inhaler from my doctor from last year. It's the same. I was gonna try to get the inhaler today but now it's not urgent.

*My doctor was sympathetic when I explained my current depression caused by adjustment disorder. We talked about how I don't have problems with my PCP office.

*Discussed lab results. We're concerned about my fast weight gain and insanely high A1c. I have to find an Endo ASAP. I'm gonna start making calls on Tuesday.

*Follow-up appointment in one month

#DiabetesType2 #ChronicPain #AdjustmentDisorder #COPD

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Tomorrow

I've got a telehealth appointment tomorrow with my doctor to go over my lab results. They're pretty bad. She's gonna be cross that I haven't found an Endo yet. I'm on a really high dose of insulin. It's not helping. But it's making me gain weight really fast. It's kinda scary.

But I'm gonna talk to her about getting me a proper rescue inhaler. I've got dulera but that's just twice per day. When I go up and down the stairs or walk for more than 5 minutes I can't catch my breath.

I'm gonna get a refill of my Norco. I've been trying to contact my previous back surgeon but they haven't responded to my 2 emails and phone calls. As long as I am making an attempt, my doctor will refill my meds. I've only been taking maybe 5 per week. I'm trying to use my tramadol more often. I'm not addicted. And I intend on staying that way.

My doctor is concerned about my lymphedema and high blood pressure. I told her how my cardiologist is handling it and she's kinda pissed. The new meds aren't working. And I had a low symptoms day on Tuesday so my cardiologist thinks everything is fine. And even after emailing her pictures of my pitting lymphedema, I haven't heard back.

I'm so frustrated. And my anxiety is making me sick. I'll talk to my doctor about how bad my adjustment disorder is. Maybe she'll have an idea. She's a good doctor.

#COPD #Diabetes #ChronicPain #a1c #BackPain #Lymphedema #HighBP

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